Aniridia and WAGR syndrome

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I only once had to deal with a patient with aniridia many years ago. Apart from the obvious need to help with the extreme light sensitivity the young woman was struggling to cope with, it was also obvious that the condition was taking its toll on the patient's mental health. She was clearly very depressed and had little motivation and, quite frankly, I felt out of my depth at that early stage of my career. I was thankful that there was help available elsewhere in the form of counselling and rehabilitation. I recalled this recently when I came across a new book published by Oxford University Press.