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Pandemic’s impact on retinoblastoma diagnosis revealed

CHECT shared insights from data collected over 10 years

Data that tracked the diagnosis of retinoblastoma (Rb) in the UK across 10 years has been released by the Childhood Eye Cancer Trust (CHECT).

The charity started collecting information from more than 300 families via a survey in 2012 and has released the data to mark World Retinoblastoma Awareness Week (May 8-14).

CHECT hoped to reduce delays in diagnosis of Rb experienced by families and quantify anecdotal feedback from families to highlight where delays occurred.

Petra Maxwell, information and research manager at CHECT, told Optician: ‘These figures give us a real insight into what’s happening on the ground for families whose children are diagnosed with this rare cancer and how that has changed over the last decade.’

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