Diagnosis communications studied

Joint research by universities in the UK explored patients’ experiences of getting a diagnosis of eye disease, the impacts and how communication can be improved.

Qualitative interviews undertaken with 18 people who had ophthalmic appointments in South England highlighted four areas to be improved. This included: the convoluted process of being diagnosed; the clinicians’ tone and words while delivering diagnosis; lack of information about diagnosis and prognosis; and additional future support.

Patients felt there was inefficient information following diagnosis and they did not know where to go for trusted online information. ‘Participants felt the provision of a hospital liaison service and/or counselling could mitigate the impact on patients and families. Clinicians should consider how they communicate a diagnosis to patients, how and when they offer information about diagnosis and prognosis, and, where possible, to signpost patients to additional support systems and counselling services as early as possible,’ the study highlighted.